Family Wedding, PEG Op..

Just after diagnosis in 2014 I bought this board which was a little easier to paddle

This month marks 3 years since my diagnosis & with MND symptoms 12 months prior I'm into my 5th year with this horrible disease & fighting it the best I can. Margaret Doody House is a MSWA Respite facility in City Beach that I stayed at the weekend before my daughter's wedding. I thought whilst my son was in Adelaide at the bucks night I'd get an idea what it would be like to be in a care facility. Not the best experience to be honest with other residents being mostly bed ridden. Anyway it was ok for a few nights but not long term, it's not for me at the moment but is probably inevitable I'll end up in a similar facility.

It's been a big lead up to Michelle's wedding & it didn't disappoint one bit. She looked beautiful for the big day & the venue was amazing! I couldn't fault the staff at Mandoon Estate they were terrific in organising the ceremony setup & keeping our glasses full at the reception. Such a wonderful day for Michelle, David & my family.

To other news with me.. I had a follow up meeting with my Neurologist regarding my PEG operation & it will be done within the next couple of weeks. I'll be in hospital for 4 to 5 days & family will be shown how to use & manage feeding me. This will be yet another part of my independence gone but it's required for my survival so I really don't have a choice. Extra care will also be needed once I return home & I'm just in the process of arranging that now. Apart from that I've been enjoying this sun through the start of winter, so much warmer than last year.