Since June 2014 I have had to give up my job as a surf instructor, freelance graphic designer, and also gigging with my band. Luckily, I've kindly been given part-time admin duties at Surfing Western Australia and one day a week at a friends print factory.

Disablity allowance is not an option until I am completely unable to work, and I daresay when that day comes it will not be enough to cover my living costs and care needs.

Thankfully like many others suffering with this disease we rely on the support of the Motor Neurone Disease Association you can learn more about them and donate via their website.

Thank you.